Houston, we have a problem

Methysergide update:

Day 3 came and went with no change in the number of hits.  I started to notice a little swelling of my ankles.  They swell up now and then so I didn't think much of it.  Increased fluid intake to see if that would help.
 
Day 4 - upped dose to 4mg.  No change in the frequency or severity of attacks.  The swelling has spread to feet and shins.  The skin on my shins has turned red (looks like I have a sunburn) and is painful to the touch.  Feet are not cold. Capillary refill is still good - when I press on my toe nails, the skin underneath goes white and then turns back to pink immediately upon release.   
 
Going to discontinue the med and see if the swelling clears up.  Also going to report this to the neuro to see what he says. 
 
Needless to say I am severly depressed by this latest setback.  I was hoping that this med was going to be the one to finally give me a break.   I guess that's what I get for getting my hopes up.  I wrote the following poem after a series of bad attacks a couple days ago.  Pretty much sums it up for me right now...

Pain

Pain shrouds my life
Like a Widows black veil
Keeping me in the darkness
Of my own personal hell

Letting through only glimpses
Of life and of light
I tear through the fabric
But try as I might

Just as I think
I might see light of day
There stands the Beast
Guarding the way

Burning hot poker
And fiery claw
He tells me he'll be here
'Til last breath I draw

To drive home his point
He stabs at my eye
His claw burns my skull
As time slowly drags by

Just before he leaves
And drifts out of sight
With a scorching caress says
See you later tonight

The veil is replaced
Blocking out skies of blue
And my struggle for freedom
Starts over anew

I'm tired of this game
Of my weakness I'm sick
Spin the cylinder once more
Pull the trigger, .....

04-30-2006

Comments

[Teri]

Sorry the new med didn't do better, Mike. :-(

[Melissa]

That rots Mike. I wish you were at least episodic (if you can't be totally PF) as all meds seem to work better on us than chronics. :-(

HUGS to ya my brother!!